Nosrati Family Foundation:
A Personal Journey That Became a Mission
Our Mission:
Turning Challenges into Change
At its heart, the Nosrati Family Foundation seeks to transform our most challenging experiences into positive action. Our foundation is dedicated to supporting families facing extraordinary challenges, particularly those affected by rare diseases like JNA. We fund research, provide assistance, and honor the dedication of caregiving mothers, striving through partnerships to create lasting impact and meaningful change in times of need.
Why We Started the
Nosrati Family Foundation
What started as a quest for answers and advocacy during a personal family struggle has turned into a mission to empower countless other families facing similar challenges.
The Nosrati Family Foundation was born from a pivotal moment of crisis that turned into a calling. When our son, Jayden, was diagnosed with Juvenile Nasopharyngeal Angiofibroma (JNA), it thrust our family into a world of uncertainty, fear, and a desperate search for information. Navigating his diagnosis, treatment, and eventual recovery opened our eyes to the harsh realities faced by families dealing with rare diseases—a reality marked by isolation and a dire lack of accessible support and resources.
The Heart of Our Foundation:
JNA Hope
We know firsthand that Juvenile Nasopharyngeal Angiofibroma (JNA) is not just a medical diagnosis; it’s a profound challenge that reshapes the lives of the families it touches. This rare condition primarily affects adolescent boys and comes with little available guidance or support.
Driven by our firsthand experience with this isolating diagnosis, we founded JNA Hope. Our aim is to ensure that no family has to face this path alone. By connecting families to the latest research, treatment options, and others who share their struggles, we transform the journey from one of isolation to one of empowered community support.
Expanding Our Mission
As our foundation grew, so did our awareness of the broader needs within the community. When we realized that the need for support extended beyond JNA, we began establishing additional initiatives tailored to meet diverse needs
Mothers With Wings
Born from conversations with mothers enduring the complexities of their children’s severe health conditions, this program offers a sanctuary of understanding and support. It provides a network where mothers can find comfort, exchange experiences, and gather strength from those who truly understand their journey.
Looking Ahead
We are dedicated to expanding our reach, raising awareness, and continuing to support families and communities in their times of need. Through the generosity of our donors and the indomitable spirit of the families we assist, we envision a future rich with hope and healing.
